The south Asian Dementia diAgnosis PaThway (ADAPT): An online toolkit of enhanced interventions

The south Asian Dementia diAgnosis PaThway (ADAPT): An online toolkit of enhanced interventions

Funded by the National Institute for Health Research (Research for Patient Benefit Programme), this project began in January 2021 and will be completed by December 2021.

Role: Co-researcher

Background:

There are approximately 25,000 people from Black, Asian and Minority Ethnic (BAME) communities live with dementia in the UK. The largest single grouping are people whose origins are from South Asian countries. People from South Asian communities are at greater risk of developing dementia. However, they are less likely to access all points of the dementia care pathway – and more likely to present in crisis and/or at a later stage in this community.

There is also a difference in service use. For South Asians, symptoms are more likely to be missed or mis-interpreted with less access to NICE recommended treatments including medication. There is also greater reliance on community groups for support (who are often not dementia trained).

South Asians are therefore disadvantaged compared to their white counterparts. Multiple interventions are required to ensure people from South Asian communities have equitable access to dementia care services via an enhanced dementia care pathway.

Funded by the National Institute for Health Research (Research for Patient Benefit programme) the aim of this project is to create an online toolkit of culturally appropriate assessments and interventions that support people from South Asian communities across the dementia care pathway.